Thanks.

Simon


I wanted to take a minute and say a public thank you for all the emails I have received over the last year about autism and about Simon. I have read stories of love and triumph and challenges; learned a ton from other mamas (and a couple dads too) & therapists & educators about daily schedules, diets, and educational toys; received so many links & infomation & files of picture schedules that I need another lifetime just to absorb it all; shed tears; and felt tremendous support.


I have connected with parents concerned about their own child's behaviors, even grandparents concerned about their grandchild. I have received emails from mamas whose children are grown - sharing words of wisdom & support & love, and emails from mamas sharing the proud accomplishments and strides their kids have made.


Thank you, from the bottom of my heart, for reaching out to me.


It was just over a year ago that Simon received his initial diagnosis of autism.


Over the last year I have had moments of denial, moments of clarity, moments of questioning, and so very many moments of joy that this awesome little boy is in our lives.


One year ago today I posted, "So, things will change around here. Pieces of our life will change." And
of course it is true - our lives have been completely altered. And you
know what, I don't think I would take one moment of it back. This is us. We have all become more us.


Here are a few new links I want to share:


• From Pam (thanks Pam): Getting The Word Out


• Sharon Sonneff wrote a very interesting and thought-provoking entry on her blog the other day: Experiencing the Mysterious


In 12 days, Simon will turn 4. We will celebrate all that makes him Simon. All the beautiful bits and pieces that we treasure about him. That we adore. That we are so very thankful for...

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62 thoughts

  1. Bari says…
    01/09/2006

    Wow. He is amazing. Your family is amazing. Such a gift that you have given to him to celebrate him as he is and to support his life, by altering your own. For seeing that childern growing up really allow us, as parents, to really grow. Thanks for all that you share.

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  2. Lisa D. aka Maxinit says…
    01/09/2006

    You and your family are truly blessed to have such a wonderful being around you and his name just happens to be Simon...continue to grow in your family and enjoy all of what life has to offer to you. I have enjoyed watching Simon grow...Thank you for sharing him with the rest of the world!
    Peace & Happiness

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  3. melanie says…
    01/09/2006

    FOUR?!? how can simon be turning four?

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  4. Beth says…
    01/09/2006

    Thanks so much for sharing your moments with us ... I have a two year old boy that was born with a stroke so I can relate to struggles and taking each day as it comes ..he is our little shining light.. Its so wonderful to have support and guidance at times and others just to share the struggle and frustrations with ... thanks Ali from one mama to another !!

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  5. Daphne says…
    01/09/2006

    Your son, Simon and I share the same birthday on the 21st. Right? How cool is that! He is so sweet. HE reminds me of my 5 year old, Joey. Those gentle brown eyes .... they melt our hearts; dont they? May you always celebrate LIFE as it is and what it will become! You continue to inspire me and alot of others!

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  6. Kelly says…
    01/09/2006

    I would like to take a moment to let you know how much I enjoy your blog. Daily I find myself visiting to see what insights, quotes, new products, or inspiration you offer. I marvel at your willingness to share snippits of your life, your loves, and your gifts. Thank you.

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  7. Brandi says…
    01/09/2006

    Gorgeous kid! (and I'm not just saying that!)

    Reply 0 Replies
  8. Jenn N says…
    01/09/2006

    What an absolutely beautiful son you have and what wonderful and loving parents he has. Thank you for sharing all you do. You inspire people creativly and emotionally - thank you!
    Happy Birthday (very soon) Simon!

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  9. Carrie says…
    01/09/2006

    Thank you for showing us to appreciate the moments - the bits & pieces. Your post today is very moving. I'm touched by your strength, your wisdom and your ability to always show grace and be grateful...no matter what. The best of "moments" to you.
    My youngest will be 2 next Sunday...and today I just held him close and he held me back, when it struck me the baby years are now behind me. My oldest being 18, I am well aware the hugs and kisses come less and less with each passing year. So while I held my soon to be toddler, I tried to absorb it all - his smell, the way his little hands pat my back when he hugs me, the little blonde curls of the hair we thought would never come...to etch that moment into my soul to recall throughout my life.
    So thanks again for the reminder to cherish the moments.

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  10. jen says…
    01/09/2006

    you are amazing. thanks for sharing! he is beautiful.

    Reply 0 Replies
  11. Katie says…
    01/09/2006

    Thanks for this beautiful post. I also shed tears. Been 9 years for us, but reading your diagnosis story brought it all back - very similar to ours.
    I also wouldn't trade any of it. I love my son for who he is and we have become an amazing family because of our experiences with autism.
    Thanks again for always being so inspiring in so many ways.
    Katie

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  12. Sharyn (Torm) says…
    01/09/2006

    another, 'it's been a year??!!' He's getting so big! hugs!

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  13. Darci says…
    01/09/2006

    Ali,
    You have been such an inspiration to me. My daughter was diagnosed with Type 1 Diabetes this past year. She now takes 4 shots a day it is at a huge risk of health complications. So many times I have thought of you and how you have faced Simon's diagnosis with strength and courage. You are not just inspirational to me as a scrapbooker, but also as a Mom.
    Thanks!

    Reply 0 Replies
  14. Martina says…
    01/09/2006

    I always stop by to read your blog, never felt like I should leave a comment... but today, today is different because it just is. Ali thank you for being. While I am not related to anyone with Autism, I did have the delight to teach two very gifted children with Autism... of all my students throughout the years... I'll never forget my days with K and D. I learned so much from K and D... how to take notice in the lil' things life has to offer was the best lesson.

    Reply 0 Replies
  15. Linda Beeson says…
    01/09/2006

    Ali - he is just plain beautiful - can't believe how GROWNUP he looks in that pic!!! Where does time go? Linda

    Reply 0 Replies
  16. Bethanne says…
    01/09/2006

    Ali,
    You touch so many lives with your passion for life, and your dedication in helping Simon. I'm a parent of a child with sensory processing disorder, so I can relate to some of your challenges, though certainly not all. You are a wonderful Mother - just hold on to this little piece of knowledge when you feel lost.

    Reply 0 Replies
  17. Susan says…
    01/09/2006

    Ali, I just want to know what an inspiration you are. Just SHARING your story and your life with others is so rewarding and cathartic to those who read. My son was extrememly premature (born at 26 weeks) and had many issues that Simon has (sensory integration, feeding issues, language delay). In fact, we had him evaluated in August for PDD/Autism but he was not given a diagnosis. He has terrific non-verbal communication skills (joint-attention) and doesn't present any other PDD-behaviors. (Just recently starting talking quite a bit) We were fortunate but we are still struggling with the issues he does have from having such a low birth weight and being so premature. I just want you to know that I read your blog daily while we were going through the diagnosis process, and even though he didn't receive a diagnosis, your blog helped me through those tough times. I am always thrilled when you post a Simon update. Anyway, I am babbling, but I just want you to know that your blog has been very helpful to those of us with special needs children. Thank you.

    Reply 0 Replies
  18. Rachel says…
    01/09/2006

    a! i just want to take a moment to applaud you! for who you are! for how real you are! for how you have handled yourself as an individaul, an artist, a wife and especially THE best mom simon could ever have! being 'you' makes you all the stronger so cheers to being just that! thanks for sharing such intimate thoughts about you and your family!!! huge hugs!

    Reply 0 Replies
  19. april says…
    01/09/2006

    i usually only lurk here (nearly everyday) but today i had to post a comment. i am a scrapper in southern california and that is what orginally had me visiting your blog but lately i have been visiting because of the wonderful thoughts you share. i have worked with individuals with autism for over seven years now. the talents, smiles, and heart in the people that i have grown to love are some of the greatest highlights of my life. thank you so much for bringing the wonders of autism to people who may never know what a blessing Simon, and others identified with autism, truly are in this world. you are a terrific mother and advocate. thank you so much for sharing your life with all of us.

    Reply 0 Replies
  20. liz elayne says…
    01/09/2006

    You, your blog and your readers are such inspirations. This line "we have all become more us" resonates with me so much. Beautiful.

    Reply 0 Replies
  21. Kirsten says…
    01/09/2006

    Ali, thank YOU for so much. Learning more about autism from you has helped me in my relationship with my own sister-in-law...her niece is the same age as my daughter, and she has autism. I was never quite sure how to talk about the girls, but now I'm not afraid, and I think she is relieved that I seem somewhat 'informed'. Thanks for that.

    Reply 0 Replies
  22. karen says…
    01/09/2006

    your little dude is AMAZING and sooo cute! Thank you for sharing him with us. Awesome post.

    Reply 0 Replies
  23. corinne says…
    01/09/2006

    ah why do you do that Ali, make me cry! You capture it so well, this is the same way i feel about our son Anthony. thanks!
    corinnexxx

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  24. Krista says…
    01/10/2006

    Ali...I know that things this year have been probably difficult and exciting, hard, confusing, and wonderful all at the same time. But, I wanted to leave you with this...and you may have heard it before, or seen it before, but Simon is the person that he was intended to be. He is Simon. You are Ali, his mother. Chris is Chris, his dad. You are all the people that you were intended to be, and there has got to be something peaceful and great about that. Continue to live in your life and be who your are...it is not a bad thing that happened to you. It is a wonderful blessing having Simon in your life. No matter what he has..he is not autisim, he just has it. He is a great little, soon to be four year old dude, that just loves his parents and knows that he is loved as well!
    have a great week!!!

    Reply 0 Replies
  25. Gloria Baures says…
    01/10/2006

    I also want to thank you for all of your insight and endless resources that I've received from your blog. My son was diagnosed with autism late last year. We have good days and bad days, it is all very new to us...but I am thankful for every single second I have with my son, who will turn 3 on January 30th. You really are truly inspiring.

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