Documenting Simon.

Skateboarding
Learning a new skill (thanks Grandpa Al for the fun skateboard).

Balancing

Balancing at the park (with Harry Potter wand in hand).

Jump

Jumping in & swimming.

Sprinkler

Running through the sprinkler and playing with the neighbor kids.

Simon

Being silly (lots and lots of that happening around here).

Checking
Checking stuff out.

You may have noticed that the long sleeves & pants are back again. When I posted about taking all the long sleeved shirts out of his closet for the summer Roberta made the following comment:

Kids know
what they like just like we do...perhaps Simon likes the "security"
long sleeves gives him...it's a tactile thing...feels like a big hug.
If you're worried about him being "hot"...look at all the people in the
world living in the desert...all wear long blk/white sleeves to protect
their skin. As mothers we try to protect our children...but being a
mother of a LD child whom we used to call "The Taz" because he would
throw terrible fits...trust me...when you let go and let me...allow
them to be who they are...everyone is happier:}

She made some points I hadn't considered (especially about people in desert climates who long sleeves to protect their skin) and it actually made me adjust my outlook on the situation. Thanks Roberta for adding your comments. We are all feeling a little happier around here...but we did draw the line when he wanted to wear his winter/ski coat outside today when it was 90+ degrees.

Hope you have a wonderful holiday weekend. Giveaways will be posted tomorrow morning.

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54 thoughts

  1. Tammy says…
    07/03/2009

    At REI they sell special clothing that is long sleeved, but still very cool. I think it is actually for people with allergies/sensativities towards the sun, but they could work nicely here, too.
    :)
    Tammy

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  2. Wanda says…
    07/03/2009

    My autistic four year old has been living in his jeans for a few months now. The only time he'll take them off is for baths, getting wet outside, and diaper changing time...then he wants them right back on. I now have a stash of jeans, so that there are always clean ones. He will wear tshirts now...but he did the long sleeve shirt phase. That Roberta lady really rocks...I love her and don't even know her. I love when others understand....even if at times we don't. :)

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  3. Sue says…
    07/03/2009

    I am amazed at the growth and progress Simon has made over the past couple of years. You must be so excited and thrilled. The skateboard looks like fun and I hope he enjoys it. For what it's worth, I agree with Roberta. Happy Fourth of July!
    Sue

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  4. Melanie K. says…
    07/03/2009

    My oldest son (who is 6) always wants to wear long sweat pants (like today outside, 90 degrees). My husband often insists he switches to shorts, but I just go with the flow of things. (path of least resistance ... I just don't have the energy to argue with him! ...my son, not my hubby ;) lol)
    Since I now have three, I have decided that if it will not physically hurt them to do what they want, let them. Otherwise, you will always be fighting. And with my three very stubborn, opinionated boys, that would be ALWAYS. sigh.

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  5. callie_swank@yahoo.com says…
    07/03/2009

    This is such a beautiful topic. Thank you to everyone for sharing. I love reading through all the great comments and advise. We have a 5 year old that has dressed herself for some time now, and I catch myself wanted to make "suggestions" from time-to-time. She is wonderfully creative and colorful (inside and out).

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  6. Shannon D says…
    07/03/2009

    Such great comments have been shared. Clothing is an expression of personality too - nice to hear kids have a voice. I too have learned to go with the flow, once my boy 3 1/2 at the time went to the dentist in his PJ's as he just would not get dressed, I chose not to fight! The dentist actually encouraged it, and then when we left Noah wanted his clothes on - go figure. And Ali you are only just touching on the surface - you have a gorgeous little girl - my two year old is starting to dictate what she wears - ballet clothes or dorothy - so you could be up for some more fun ;) skirts over pants are a favourite!

    Reply 0 Replies
  7. Amybug says…
    07/03/2009

    I love this post!! My almost four year old little man has sensory integration issues and Hypotonia and I have learned so much from him about living "outside of the box". His quirks truly make our lives more interesting =0)

    Reply 0 Replies
  8. jmbmommy says…
    07/03/2009

    Kudos to you Ali for being a great mom. Sometimes we all have to rethink our "edicts" for our kids and it takes a great person be flexible about when things need to change. Thanks for sharing!

    Reply 0 Replies
  9. Michelle Infantino says…
    07/03/2009

    My little girl has ASD. We have trouble transitioning from sandals to regular shoes each fall. She'd rather have her toes out than deal with socks etc. Can't blame her really.
    I wonder if the clothes make him more aware of his body? More aware of his movements etc, ie the brushing of the sleeves on his arms and the brushing of his pantlegs on his legs? Perhaps more centered?
    I wonder if they make Underarmour in his size. Might be something to consider since it is supposed to keep ya cool in the summer yet insulate you in the winter. hmmm...........
    If it makes you feel any better my Dad has to wear long sleeves to work every single day regardless of heat, etc. He works in an electrical plant and arms must be protected. Think of all the welders etc out there that have to have arms covered. Think of all the middle Eastern women who remain completely covered and in sometimes in black!
    I just go with the flow with my child. She's the best little individual I know. I do maintain appropriate behavior but I don't sweat the small stuff. The small stuff always turns out to be the best stuff, the cutest stuff and the stuff that makes you smile after a tantrum etc. One of a kind baby! It's the only way to be. Peace.

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  10. Kathy says…
    07/03/2009

    Another long sleeve explaination - My husband and I owned a nursery back in the 90's and employed over 30 people from a variety of South American countries. They all wore long sleeved shirts. This was in Florida, in the summer, in greenhouses. Very hot. They all said the shirts not only protected them from the sun, but also wicked away the sweat and made it more comfortable to work.

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  11. Christina says…
    07/03/2009

    Great to hear your story about long sleeves. My grandson has Down Sydnrome and is 4 years old. He loves to swing around a pair of tights especially when watching television. This swinging things can be a problem for DS children and sometimes adults also. One day when he was over I quietly took the tights away when he wasn't looking. This is what special ed had encouraged us to do so they would not continue the habit as teenagers. Well he looked at me and looked around and without making a sound his eyes were flooded with tears, they were streaming down his face. Now you might think that that isn't a big deal but Sebastian hardly ever cries. It broke my heart seeing him and now I have a rule that he can swing to his heart's content while we are at home but no swinging outside the house and he is very happy with this arrangement. Keep up the good work with your son, he will appreciate it when he is older and wiser.

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  12. Cindy Holshouser says…
    07/03/2009

    This cracked me up. My son (just turned 8) won't wear shorts (unless he's swimming). Today we went to a pool and it hit 90 degrees (I live in the same general area as you do) but he still wore jeans to and from the pool. I just can't imagine:)

    Reply 0 Replies
  13. gladie says…
    07/03/2009

    Thank you so much for this post - I have a son too who preferes long sleves and pants even during this hottest summer ever - and now I know: This is his comfort zone, not mine to fight. So thank you! *hugs* :D

    Reply 0 Replies
  14. Barb says…
    07/04/2009

    Your post made me smile. It looks like Simon is doing tremendously well. I love that your blog readers give you support and leave you with tidbits that made you think. You're a great mom, Ali, and when you share, we all learn. :)

    Reply 0 Replies
  15. Asha says…
    07/04/2009

    I remember when I was about 5, I would wear long sleeves in the summer. I even remember the feeling of wanting to be warm as if it was yesterday. Just wanted to add that. I think parents think their kids are as warm or cold as we are but they have a lot less meat on their bones, they don't get as over heated as we do.

    Reply 0 Replies
  16. Donna W says…
    07/04/2009

    I would love to be running through those sprinklers in the sun! Thanks Ali.

    Reply 0 Replies
  17. Deborah Wisker says…
    07/04/2009

    I see where Roberta is coming from. My niece is on the spectrum and just a few months younger than Simon....she will only wear dresses to or past her knees! I have some great pics of her and my sister "dress shopping"!

    Reply 0 Replies
  18. Danielle says…
    07/04/2009

    I love all the photos you shared in this post! Have a wonderful July 4th weekend!

    Reply 0 Replies
  19. Karen says…
    07/04/2009

    My 9 year old is autistic and he often likes to have his head covered--hoodies especially. When he's playing his video games he likes to be covered up with a throw with only his face visible. He has always had sensory issues and I think this must be something he does to self sooth himself. Now, if I can only figure out a solution to his compulsive chewing of his shirts!

    Reply 0 Replies
  20. Panamomma says…
    07/04/2009

    I think it is super that you can get input - good and bad - from so many different people. My son is a long sleeve shirt and long pant kind of kid as well. Here in Panama it is warm all year long, but he does it to protect himself from the sun. I am okay with it most days because it means I don't have to deal with sunscreen. When he gets too hot he comes inside and changes clothes. Works for us. Happy Fourth of July!

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  21. con-tain-it says…
    07/04/2009

    Wow...thanks Ali for mentioning me in your post...it brought tears to my eyes (from laughter) at the "winter/ski coat" issue...gotta love our boys! I hope my son doesn't mind me talking about his "taz" days on line...but my family pretty much know that I "blog" about everything...they've been known to say...are you gonna "blog" this? If you feel like, go check out how wonderful the "taz" his with his beautiful new bride on this blog post...they were wed June 20th...everytime I look at this I cry! Simply Beautiful...http://con-tain-it.typepad.com/my_weblog/2009/06/simply-beautifulsimply-seletafabulous-friday.html
    Hope you all have a great July 4th, Fondly, Roberta

    Reply 0 Replies
  22. darlene says…
    07/04/2009

    great pictures and post

    Reply 0 Replies
  23. Deb J says…
    07/04/2009

    What great insight. You are such a good mom. I have fallen in love with your Simon. I am always excited to hear more about him and see new pictures of him.

    Reply 0 Replies
  24. lynne says…
    07/04/2009

    Gosh, I remember when my kids were in grade school and they disliked the change in seasons as much as they loved them. Meaning they didn't like putting away the long sleeves in springtime and the shorts in the winter. (of course now they are teens I can't get them to wear coats/sweaters for anything in the winter. Too much to add to their day during schooltime. Plus in the desert it is only cold for a few hours at a time in the winter.

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  25. kimberly says…
    07/04/2009

    I just had to laugh about you having to draw the line about ski coats in 90+ degree weather. We have to do the same thing with our son, who is now 16 and knows _why_ we do it but still needs us to.

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